Mado is a member of the Rare Disease Alliance and a member of the governance of the Chiari Syringo-MAVEM Reference Centre. At 64, she suffers from syringomyelia and chiari, two rare pathologies of the spinal cord and cerebellum. At the Scientific Board of APAISER S & C she developed a study on the medical use of cannabis. She presented to the ANSM CSST on “the real life of patients who use cannabis.”
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